Not compatible with life

February 26th, 2014

Then Jesus said to his disciples, ‘Whoever wants to be my disciple must deny themselves and take up their cross and follow me.'”

“If anyone comes to me and does not hate father and mother, wife and children, brothers and sisters—yes, even their own life—such a person cannot be my disciple.”

“And whoever does not carry their cross and follow me cannot be my disciple.”

“In the same way, those of you who do not give up everything you have cannot be my disciples.

“To this you were called, because Christ suffered for you, leaving you an example, that you should follow in his steps.”

“For even the Son of Man did not come to be served, but to serve, and to give his life as a ransom for many.”




That’s as far as this embryonic blog post had developed over the past several weeks–just those few verses of Scripture plunked into an empty post draft.  Half-formed thoughts were trailing far behind.

Just now, as I popped in here to ask for prayer, it somehow seemed appropriate to add this particular prayer request to this particular post.

We’re still waiting for the transportation to come together in order for Tommy to begin his school program.  Tommy still vomits at random during the day as well as every night in his bed.  During this crazy impossible holding pattern, we are accomplishing  1) Meetings to Transition Tommy to School,  2)  Wedding Preparations, and 3) Bare-bones Home Education.

During a conversation with my dad a few days ago, I explained some of the reasons behind the new plan.  “We can easily see our situation getting worse–there are lots of ways it can and probably will get worse–but it’s unlikely to get better for a long while and we needed a plan that would work over the long term.”

One of the ways it could get worse?

We’re back to the dreaded blow-out diarrhea.


It’s forty-five minutes before bus time.  That’s how long it takes me to get Katie ready for school, and that’s when Joshua called up the steps to me this morning.  “Tommy’s diaper is leaking onto the carpet and getting on the toys.  What should I do?”

Have Joshua contain him in his high chair until Katie is on the bus.

Take two hours to clean Tommy, clothing, floor, toys (the ones that weren’t thrown away), and high chair (now covered by a large trash bag again), and have three of at least four needed phone conversations with Tommy’s medical providers to alert them that we urgently need a new plan of care.

During most of that two hours, baby Ben was awake, hungry, and fussing to be nursed, in spite of Joshua’s best distractions.  [Yes, I am NAK-ing, also known as Nursing At Keyboard.] 


The wedding of our first-born son is three days away.


Some of you have strengthened our hearts by letting us know you have not forgotten to pray for us, although I am unable to blog as I was previously.

Did you read the verses at the top?

This is the one we want to write on the wall over the doorway in our living room.

“For even the Son of Man did not come to be served, but to serve, and to give his life as a ransom for many.”

Because in our wealthy, comfy, insulated, insured, paced, planned, leisure-time North American lives, it’s easier for us to follow Christ into arms’-length “serving,” or “ministering,” the cherished core of our lives still preserved to us, than it is for us to follow Him into suffering and giving His life as a ransom for many.

Yes, giving up life if that is what He asks of us.

Jesus has asked us to take onto ourselves the burden of sixteen years of the sin of others against our son Tommy, sharing in the suffering caused by this sin, giving up our life in order to help bring Tommy from death to life.  He has put us into the privileged position of being a flawed, shadowed, miniature likeness of His choice to accept the burden of our sin onto Himself, giving up His life to bring us from death to life.

He became sin–ugly, putrid, messy, disgusting sin–for us, He suffered for us, and then He died.  For us.

That is the Jesus we follow.


I came to you to ask for prayer, friends, but when it comes right down to it, this time all requests are dying in my throat except for one.

Please pray that we will stay faithful to Him as He is always faithful to us.




Can’t resist the humorous side of this.

I was kneeling at the side of the tub, washing a thrashing, splashing boy who was coated with an unsavory substance, when the verses I had read earlier this morning popped into my head, this time with a twist.  I am not kidding…

“Save me, O LORD, for the poopy has come up to my neck…”




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54 Responses to “Not compatible with life”

  1. Susanna says:

    K, now that is an innovative idea! Thank you for your understanding words! ((((hug))))

  2. Lori (Maine) says:

    Susanna, another thing I just thought of that may have been suggested in the past (not sure). Wondering if perhaps donated breast milk (by a licensed milk bank and donor with a clean bill of health) would be better tolerated than formula for Tommy? Truly do wish I lived closer and could go help (of course if I were near by would be absolutely fine with submitting to a background check or whatever!) Prayers continue!

  3. Gina in Spain says:

    OH Susanna…..I so wish I could help you…but I will offer up prayers for you that God lifts some of the load off your shoulders…: (

  4. Jocelyn Scott says:

    Dear Susanna,  
        I sympathize with your problems with Tommy, because my son had chronic diarrhea between just over a year and two and a half years; nobody ever figured out what caused it, but he grew out of it.  My sister had a five-year-old and two toddlers suffering from the same problem at once; no wonder she had a nervous breakdown.  Of course Tommy is much older and his problems much worse.  I really shouldn’t put my oar in when your doctor is much more knowledgeable than I, but I can’t help asking: Is Tommy getting only liquids?  When my son Chris had diarrhea, the doctor put him on rice baby cereal.  Does Tommy’s doctor have a reason for giving him only  formula (if that is what she is advising)?  I can’t help thinking that some easily digestible solid food would help “firm him up.”  Jocelyn in Toronto                                                                                                                                                                                  

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