It looks like we’ll be here at least until the middle of next week.
Tommy’s IV has been discontinued.
For the time being, he’s being fed solely through the NG tube, which in his case must be accompanied by no-no’s on his arms. He’s quick and he’s strong. And remember the miniscule amount of impulse control?
He continues to undergo nutritional rehabilitation as well as GI testing.
He’s looking so much better than when I brought him in, and that’s good to see.
We’re beginning to get some answers and form a tentative plan for what we’ll feed him and how we’ll feed him.
We’re being well taken care of. There is such a pleasant, easy-going atmosphere in this place, and everyone seems to be enjoying their work.
The staff who have worked with us here are phenomenal. They are amiable and courteous without exception, ask excellent questions and listen attentively, are eager to understand the big picture of Tommy’s situation, and cheerfully make sure every need we have is taken care of to the best of their respective abilities.
Some have offered to hold Ben when that’s helpful for me. Some have threatened to take him home with them. <grin>
I’m also learning a lot about Tommy during this time.
From carefully observing his reactions to the various activities and interactions he’s had this week, it’s clear that he’s more emotionally fragile than he might outwardly seem.
Sometimes when he appears to be happy, he’s simply coping with stress or giving an inappropriate emotional response to pain.
Not surprisingly, he regressed a bit this week.
It was hard to see him chewing on his tongue and grinding his teeth on the most challenging days. Trying to cope–to soothe himself–the best he learned how during empty hours and days and months and years.
If zero is completely calm and ten is uncontrollably overstimulated, Tommy needs many techniques to help him back down to zero, as he hits ten fast and frequently.
I’m experimenting with some simple strategies…
…to help him come back down to the calm place where therapy and other types of learning are most successful.
And he can learn. He is learning.
He has so much potential.
Tommy was very neglected for a very long time.
He has a very long road of bonding, healing, growing and learning ahead of him.
It’s a true privilege to be his mama and walk that road with him.
P. S. A little fur ball named Ellie came to live at our house this week~