SAT. SEPT. 14 UPDATE: Tommy’s diarrhea has come back. Thank you so much for praying for our boy!
Thank you to everyone who prayed for Tommy and for us over this past week!
We definitely could see the answers to prayer as a few different pieces of the puzzle are slowly coming together. This is not going to be solved quickly. We can see that there may be a G-tube at the end of this road, but we’re not ready to go there quite yet.
We did a lot of trial and error this week. On the worst day, Mr. Tom-tom was taking two hours to eat each meal and there was still no change in his bowels.
What’s (sort of) working right now is to eliminate simple sugars like fruits, discontinue the low-dose antibiotic, and give him heavy-duty probiotics.
We changed his diet pretty drastically in one day, which isn’t the ideal way to handle it, but we were desperate to resolve the diarrhea.
We’re giving him a mineral-rich bone broth as the liquid part of his diet. We made this by roasting a turkey, de-boning, chopping, and refrigerating the meat, then putting what was left of Turkey-lurkey into a stock pot with apple cider vinegar, onion, garlic, real salt, butter (the only dairy product we’re giving him), cayenne pepper, and some culinary herbs. After that comes to a boil, we keep it simmering for several days. It smells fabulous!
We take some out each morning to make up his day’s food and then add more water, return it to a boil and continue to simmer it. We thicken some each day to spoon feed him. For his solid food, we’re grinding turkey with baby rice cereal and bone broth. We’re adding about an ounce of my milk to each of his meals. We can alternate rice with potatoes and add other fresh or cooked vegetables as he tolerates them. We’ll use chicken and beef as well as turkey as time goes on. I’m not finished researching which fresh and cooked vegetables meet the narrow criteria. His bowels returned to normal, but didn’t stay there consistently throughout the week.
We’re finding our feet again after our wonderful routine had to be interrupted. I look back at this past week amazed that any schoolwork happened, but it did.
We’ll continue to seek for answers to the big question–
What can we feed Tommy that he will tolerate, that will help to heal his gut, that will not cause diarrhea, and that will contain just the right amount of the kind of nourishment he needs?
Thank you from the bottom of our hearts for reaching out to us with love, strengthening words and your best advice! We are astounded at the response you gave to our S.O.S. post, both in comments and private emails. I wish I could have replied to every one individually. but please know that you all are making a difference in our lives, and we are so thankful to the Lord for all of you!