“They think we love our kids in spite of the fact that they have Down syndrome. They don’t realize we just love them.”
Have you ever noticed the shocking disconnect between the insider and outsider views of Down syndrome?
Have you heard parents talk about their child with Down syndrome as a prize package? And how privileged they are to have received such a prize?
Have you wondered how in the world that fits with the perspective of the wider culture? The bare fact is that our culture aborts over 90% of babies who are discovered to have that extra twenty-first chromosome.
When Verity was still an infant, seeing pity in others’ eyes cut my heart like a knife. Now, when I see that look of concern and hear, “I’m sorry,” it doesn’t even sting. I immediately realize that they are still over on the other side of that great divide. I chuckle to myself and think, “You have no idea what you are missing!”
We had no idea what we were missing before we had a little someone with Down syndrome in our lives!
[Laura and Jane took a turn to dress baby dolly and take her picture.]
My friend Patti, mom to Lily, is determined to help bridge that great divide on her blog, A Perfect Lily. A few days ago, she asked many mothers to answer the question, “As a mom, what do you wish others knew about Down syndrome?”