Last doctor visit for two months!

August 17th, 2010

We hope so, anyway!

Verity spent a few hours at the Clinic for Special Children yesterday.

She saw Dr. Chowdhury and had another echocardiogram.   Typically, technicians perform the echoes and the doctors just read the results later.  Yesterday, Dr. Chowdhury watched the echo for a while, then took over and finished doing it herself.  She found that Verity has a very small ventricular septal defect (VSD) that last week’s echo missed.

We thought this new finding was very ironic, considering that last week’s echo appointment (with higher-quality equipment at the Hershey Children’s Heart Group) cost about ten times as much as this week’s echo appointment!  $3332 compared with $323!

Dr. Chowdhury was very pleased with Verity.  She said that the VSD won’t cause any noticeable problems, the leakiness of the valves has not increased since last week, we can cut the dosage of Lasix in half, and we don’t need to see her again until the end of October!

Then Verity was seen by Dr. Strauss.  He said that she is not aspirating when she eats, but she does have upper airway congestion as well as noisy breathing due to her mouth and throat position.  He said this is present in virtually 100% of babies with Down syndrome.  She also has reflux.  We’ll be trying to manage it by adding a little rice cereal to her milk to weight it down and keep it from coming back up.

I approved of him for three reasons.  One, he is a good teacher and took time to answer my questions with clarity and detail. (Just like Dr. Morton did.) Two, he was able to draw blood for Verity’s thyroid bloodwork on his very first attempt!  (After the nurse gave up and went to find him!)  And three, he gave me sound advice.  He said that Verity is a beautiful person, and a beautiful part of our family, and that we should try to avoid seeing her in terms of her medical problems.  We’ll take care of those as they arise, but we should do our best to keep them in the background where they belong, and enjoy this little person for who she is.

Since yesterday, her congestion has turned into a full-blown head cold, so she’s not sleeping well.  When she’s awake, she is fussy due to the cold and to her increasing irritation with the feeding tube.  So I’m giving her a merciful break from the camera for the time being!

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8 Responses to “Last doctor visit for two months!”

  1. Joy Horton says:

    Oh, I’m so sorry to hear that she’s sick! Poor baby!!!!! I’ll be praying for her extra!

    I love this Dr. Strauss! Yay!!! That’s wonderful to have the doctor’s “permission” to put the medical issues in the background!!!

    God is taking care of you, and sweet little Verity!

  2. Marilyn Osborn says:

    Hope she is feeling better soon and so glad to hear you are released for awhile!  I hope you all can find your groove with schooling!  HE has it all under control already….all you have to do is join Him!  ((hug))

  3. Pray Verity is feeling better soon!  I also pray that all goes well as you make your way back into homeschooling.  May the Lord fill you with widom…

  4. Sandie says:

    Ahhhhh, I remember how good it feels to have a break between specialist appts!!! 
    What a blessing those docs are to our community. 

    I’m sorry Verity is sick.  I pray her head cold stays in herr head and doesn’t settle elsewhere.
    Christopher use to have the “sandpaper” breathing, too.  All part of the low muscle tone.   Does she snore, too?  What precious sounds our babies make!

  5. sabrina says:

    I’m so sorry Verity has a cold. I pray she feels better soon.
    What wonderful advice Dr. Strauss gave you. Thank you for sharing that.

  6. Erin says:

    2 months will be such a wonderful break! How excting. Just to tell you, Grady has terribly small passage ways and he sounds like he has a horrid cold but it just the congestion stuffiness post nasal drip down syndrome thingy. Im so over it but getting used to it at the same time.
     
    She is looking so good!

  7. Two months is a more than welcome break from the hospital scene…..

  8. Stephanie Blanchard says:

    Yay for the break! Praying for her headcold and your homeschool year!

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