July 29th, 2010

…are at least as good as monitors!  Everything Verity was doing at home that set off my “mommy monitor,” she is doing here to set off the little alarm bells over and over.  Her oxygen levels occasionally drop into the upper 60’s and lower 70’s, and now we can see the crazy things her breathing does, right up there on the screen.  But now we’re safely here with lots of other help watching, too.

All the doctors who have seen her, including the surgeon, agreed that she could not have waited until next Wednesday for the surgery.  The surgeon, Dr. Clark, called it an “urgent situation.”

We are both very impressed with Dr. Clark.  He was unhurried, sensitive, and very clear in his explanations of the defect, the procedure, and all the possible scenarios we could run into.  We explained that we did not have any fear as to the outcome, not because we thought nothing could go wrong, but because we know that God is the One in charge and she belongs to Him.  And he agreed.  We also told him that hundreds of people would be praying for him tomorrow.

And all the other staff have been exceptionally kind, as well.  Verity’s night nurse is wonderful!  Calls Verity “Sweet Pea,” and is so tender with her.  Someone showed us around the pediatric intensive care unit (PICU), where they will take Verity following the surgery, and where she will need to stay for several days.

So tonight we are trying to put all the love into her that we can get into such a little package.  Lord willing, we will say goodbye to her tomorrow morning around 7 am.  Depending on how long it takes the anesthesiologists, Dr. Clark will begin working anywhere from 8 am to 9 am.  The procedure takes about five hours in the best case scenario, and we were told not to expect updates during that time.

When the nurses get the call that Verity is out of surgery and on her way up to the PICU, they should come out to tell us.  Dr. Clark said that sometime after that, he will come out and give us his report.  He said this would be 2 pm at the earliest.  Then we should have another wait until they allow us to go back to see her.

Our plan is to send out a short update after Dr. Clark talks with us and before we go visit our sweet baby rosebud.  Thank you again for all your loving prayers for her!  We are resting in the good providence of God.

P. S.  Could you also pray for our other children to be a blessing to the friends they are staying with?  We are hoping they still want to be our friends after this week!  :D

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32 Responses to “Mothers…”

  1. greta says:

    This is good news…may God comfort you and care for you at this time.

  2. Kelly says:

    My sister-in-law (mom of Grady, proud owner of an extra chromosome and all the cuter for it!) sent the link to your blog and I am joining in the prayer brigade.  We’ll be keeping vigil with you.

  3. Laura says:

    heard about your little Verity from Stephanie (Daily Smiles blog) – said prayers tonight for all of you (including the doctors and nurses) and will be thinking of you all, especially Verity, tomorrow.  Our Whitney had her open-heart surgery on 12-1-08 and could not be healthier now.  She was in BAD shape prior to her surgery – I know Verity will come through her surgery just as well as Whitney did :)

  4. Kim says:

    Sending lots of prayers~

  5. Jennifer says:

    Praying that you are able to rest tonight, for your other children, and for Verity. And tomorrow we will all be praying for that surgical team, that God will guide their hands and protect Verity. May God’s will be done in her life.


  6. Worry?  It is impossible I am convinced not to worry when you are in the extreme hardship that you are in now.  But God knows what we are and he loves us extremely even if we don’t do everything right.
    I pray that you both will rest in the knowledge that God knows the future.  Why would we trust the future to anyone else?   Please don’t get so exhausted that you can’t make wise decisions

  7. Barb Murphy says:

    Praying for you and Verity tonight, and for the doctors and nurses who will be caring for her tomorrow.  May you and Joe and the rest of the family feel God’s grace and peace surround you during these long hours of waiting.
    My presence will go with thee, and I will give thee rest.  Exodus 33:14

  8. Zoey's mom says:

    Also arriving via Stephanie at Daily smiles.
    My oldest daughter has spent hours getting to know your sweet pea and your family.As I wandered the house taking care of this or that,she would share a story and pictures and together we came to know your Verity a bit better.
    We too have a little love sporting an extra chromosome.She not only came packaged with that magic chromosome but a host of other issues,one being AV Canal.At 5 months of age she had her very tired heart, perfectly repaired.Up until that,she never cried,never smiled,she just held on,and God did the rest.
    As He will with your precious girl.Tomorrow we will be sending prayers in great abundance for all on Team Verity.We pray for God’s healing hand to guide all involved in her care and His amazing peace and comfort and grace to cover you all, in any anxious moments.

  9. Ashley says:

    I will be keeping Verity, doctors, and nurses in my prayers. Love!

  10. Patti says:

    Praying, praying, praying. I’m posting a prayer request on Lily’s blog as well. HUGS!!!

  11. LizBeth says:

    Just heard about Verity. Absolutely a sweet pea!  God’s hands are the best, you are right.  Will be remembering you in prayer today.

  12. Patti says:

    P.S. Susanna, hope you don’t mind I copied and posted your photo onto my blog- helps to give people a visual of that sweet baby they are praying for! oxox

  13. Kristi says:

    I’m so glad she’s there in the hospital, being so carefully monitored. I will be praying tomorrow. She is so precious.

  14. Ruth E says:

    Up late and praying for you…it seems like yesterday that I was in your place…tomorrow morning, handing your precious baby to the OR nurse will be the hardest thing you’ve ever done (it was for me anyway), but God will be there holding you every step of the way…

  15. Joan Deering says:

    Father, we pray for Baby Verity, her parents and extended family and all those who are involved in caring for her. Lord, bless the efforts of the medical team; guide the doctors, nurses and all those involved in Verity’s care; inspire them with your divine wisdom and healing mercy. Oh, God of miracles and unfathomable divine mercy, hear and answer our prayers for this child and her loving parents…In Jesus’ name we pray. Amen

  16. Stephanie Blanchard says:

    Susanna, I started tearing up when I read that she has a nice nurse. I’ve prayed that specifically for you ever since the nurse with the ‘tude! I just love how God is caring for even the smaller details, what an Awesome God we serve! I’ll continue to pray for you as we are up and down tonight with Solomon. Find it interesting that he is getting up more, now that Verity is prepared for surgery. I’ve prayed during each nursing session and as she declined he has nursed more. Some would call that a coincidence, but again, it’s God!

  17. Wanda says:

    praying for everyone , love you all!

  18. Denise says:

    We will be praying….. and praying….. and praying……

    Yesterday your other children were on my mind– we are praying very much for them during this time— a new baby is an adjustment to any family– but this has been a real change for the ENTIRE family— we are praying for EACH one of you….

    God bless– you……

  19. Denise says:

    PS:  I put Verity’s picture out on my fb prayer request page too…. (very small group)

    and for my church family– as I just found out many of have met you and ALL of them know your brother……  it is nice to put a face with a name….and a prayer….

  20. Erin says:

    8am, praying hard. Hugs to you.

  21. Nancy says:

    I also found Verity through Stephanie at Daily Smiles.  Our daughter, Rebekah, was born with a chromosomal defect (DiGeorge Syndrome) and a severe heart defect.  She underwent open heart surgery at 10 days old.  She is now 14 months old and waiting for her next heart repair.  These babies are so sweet and so special.  We thank God daily for our little sweetheart.  I’m praying for you and Verity and the doctors today as they repair her little heart.  Will be checking back frequently for updates!

  22. Joy Horton says:

    Just saw this now at 8:10 a.m. Praying for you all. {{{{{{huge hugs}}}}}}

  23. Marilyn Osborn says:

    Praying… mother’s heart is upholding yours in prayer for peace this morning.  Praying for your sweet Verity’s strength and for the doctors….for your children, hubby…..May God continue to be glorified.  Love you…M

  24. Kim says:

    My husband and I have 5 children, our youngest has DS and complex heart defects.  He is so beautiful, just like your precious baby, Verity.
    Ive been there, 3 times actually, handing your baby to a nurse/resident, to be taken into the OR for heart surgery.  The hardest, hardest, ever.
    The days and weeks in PICU/CICU….so hard, up and down, sleepless, headaches, missing your other children.
    I wont tell you its easy, but God is with you.  There was one day, 3 days after Will’s first heart surgery, worst day ever, crying on the floor of the bathroom…I felt God’s presence like never before.  Peace fell on me, head to toe.  If it had not been for precious Will, his broken heart, I would have never experienced knowing Gods love for me, like that. AND beyond a doubt, as I falter, Will is going to be there to bring me back to the basic knowledge of what really is important.  I claim it, I know it.
    God is with you today, I have prayed for Verity, She WILL grow and show the world all the love she has to give to so many.
    <a href=”” target=”_blank”><img src=”” border=”0″ alt=”Best Dr. Ever”></a>

  25. Sarah says:

    Oh, Susanna, Joe, and all your precious children………may each of you feel the strength of His everlasting arms underneath you………may the doctor’s hands be extensions of Christ’s……….may the peace of God that passes all understanding keep your hearts and minds stayed on Him……..loving you and praying,praying, BELIEVING GOD!

  26. Cole says:

    Susanna- my heart is with you and sweet Verity today. She will be strong and determined and be back to your soon.

  27. Aunt Carol says:

    Am praying for all of you.  Send it out to our church people.

  28. Sabrina says:

    Verity has already touched so many hearts in her short life. The Lord tells us many places in His Word to be like her, and I’ve been truly blessed by her example. By her example, and yours, I’ve seen a glimpse of how much our Father loves us. We pray for her every day, and will be sending extra love and prayers this week.

  29. Praying for precious Verity today and keeping you, Susanna and Joe in prayer as you wait.  Also praying for the rest of your children, may their time with your friends be a blessing to all.  So glad you have them to help during this time.  May the Lord be near you all.

  30. Sandie says:


  31. Becca says:

    Hi!  I found you through Daily Smiles.  Verity is absolutely precious, and it sounds like she’s in good hands.  My daughter, Samantha, had her heart repaired at 4 months old.  Feel free to drop me a line any time!  My thoughts are with all of you.  I hope all goes smoothly!

  32. Adina says:

    I hope you don’t mind I posted on the Ds board on babycenter this morning.  I am praying for you and I know all of the other mommies will want to pray for you and Verity.  She is so beautiful and you are so blessed to have gotten to meet her and know her.

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