How she’s a-doin’

July 31st, 2010

This morning Dr. Clark gave Verity’s heart a chance to “fire” on its own without the pacemaker, but it didn’t pass the test.  This condition is called a heart block.  But she has a chance to try again tomorrow morning!   Her nurse today said some drs. will wait up to ten days before deciding to implant a pacemaker.

Yesterday, during our first visit to her, Verity was already attempting to breathe on her own, although she is still on a ventilator.  This is called “breathing above the vent.”  This is a good sign of her spunk, but it isn’t beneficial to her yet, as she still needs to rest and preserve her energy for healing.  In fact, as long as I was touching her and talking to her, she would stir, as if she was trying to respond to me, and her blood pressure would go up.  Joe asked the nurse if my touching her was causing that response, and she said, “Yes, but I didn’t want to tell mom that!”

So, Joseph and Daniel, when you read this, please explain to Jane that right now I am having to love Verity by not touching her and not talking to her.  Just like she had to love Verity by not coming near her with a runny nose.  It is hard!

She was kept under sedation all through the night.  As the nurse would see her begin to stir, she would give her the next dose of sedative. But they noticed that after each dose, her blood pressure would drop too low, so they decided to “drip” it into her through IV to keep it at a more steady level.  Before that made its way into her, she woke up and her blood pressure started spiking too high.  So the nurse gave her another one-time dose and turned on a music CD to help block out other PICU noise and calm her.  This music is the complete Bach cello suites, played by Yo-yo Ma.  It was a gift from my brother years ago, and has been our favorite baby-soothing music ever since, so Verity is already familiar with it.  It worked–her blood pressure immediately went back to normal levels.

Verity’s right lung is partially collapsed, so in order to help inflate it again, they gave her a chance to breathe without the ventilator this afternoon.  But she didn’t do so well there, either.  After ten minutes, she was gray and her breaths were still weak, so they concluded that she needs to rest again and store more energy before they try it again.  Still too tired out from her big day yesterday!

I had not explained this before, because I thought I might not need to, but Dr. Clark had prepared us for some of these setbacks prior to the surgery.  He said that because she was on the young side, and was in poor condition going into the surgery, that she was more likely to struggle with some of the recovery as well.  We are also prepared that her progress may be slow with eating when she gets to that point, and may go home with the feeding tube.

So we know that she has been and is still more vulnerable to some of the problems that may arise.  But she has passed the two biggest hurdles, the surgery itself, and the first twenty-four hours.  Her next big hurdle is to breathe on her own, and we’ll be praying for her to be able to do that within the 48-hour time frame.  Until then, she will continue to have one-on-one nursing care.  We are very impressed with the expertise of these PICU nurses, and so far, the day nurses are also very personable.  We are concluding that maybe if a nurse doesn’t have people skills, she may be more likely to be assigned night duty.  Hmmmm, our theory, anyway.  <grin>

Got a visitor!  I’ll tell you more later, but for now, we’re off to see Verity!

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8 Responses to “How she’s a-doin’”

  1. cindy says:

    so glad you’re able to keep us updated, most of all though that you’re able to see her, update with the staff so well. and little Verity, for her condition, is doing okay.  it will be a long road but God knows all the steps, and won’t leave either of your sides.  While you can’t touch her, she’s in His everloving and STRONG hands.  May you all be blessed during this time and be a blessing to all those you come in contact with there.

  2. Susan Wiker says:

    We will continue to ask God’s favor on Verity as she gains strength and heals.  I am especially praying for the rest of the family as you are apart for this season.  May God take care of anything that needs to be handled BEFORE it is known.  These song lyrics have been in my thoughts today
    Jesus Loves the little children – Yes Jesus loves Verity because the Bible tells me so.
    Blessings!

  3. Joy Horton says:

    Continue to pray for Verity. Thank you for the specifics on how to pray. We love her so much – you can have the older boys tell Jane that WE are loving Verity by staying here in Ohio! <wink> It is so hard not being able to bring you treats to the hospital and see Verity in person but the pictures are sustaining us and we look forward to meeting her in the future. We love you!

  4. Marilyn Osborn says:

    Thank you for taking time to update.  I love reading everything and love to be able to pray for things.  We love you all.  M

  5. Melissa says:

    Thank you for the update!  Verity is doing great!  I know that these ‘setbacks’ can seem scary but she was very young for the surgery and her fighting spirit is very strong.  I’m sure she will recover quickly.

  6. jennifer76 says:

    Thank you so much for updating.  I really enjoy reading and my whole family and some friends are praying fervently for Verity and for your family (((hugs))).

  7. Kelly Y (kyngbld) says:

    I continue to pray. Thank you for the update. I look forward to more as you are able. Love, hugs, and many blessings to all of you!!

  8. allison (christianmomoflots) says:

    As was mentioned already thank you for letting us know how to pray for Verity! We are praying for you and her! I am so sorry that she is having setbacks, even if it is normal it makes me tear up to read. Thank you for updating!

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