All the questions I had for Doctor Morton today had basically the same answer. There were questions I didn’t ask that had the same answer. Her heart is failing again. He noticed a marked change in her since she was in last Thursday.
So he doubled her dose of Lasix for now. He also made an appointment for her with the pediatric cardiologist this Thursday morning rather than having her wait until next Monday afternoon.
He told me what we were beginning to suspect. Her surgery will probably be sooner rather than later. Her heart isn’t acting like one of those that does well on medication for the long-term. But we’ll see what the cardiologist says on Thursday.
When I asked him about the surgery success rates being better when the baby’s heart is larger, he said that used to be more true than it is now.
Every time I go into this clinic, it seems like all that the doctor and nurse have to do for two hours is focus on our Verity. I don’t know why this surprises me so much every time. But it does. It does my mother heart good to see their tenderness toward her. The nurse finished giving her the bottle that I took along, and showed me a little trick to help her coordinate her sucking more efficiently.
Oh, and she passed her hearing test easily. I knew she would, because she will turn her head all the way from one side to the other in order to see who’s talking over there! There is no fluid in her ears at this point, as is common among children with Down syndrome. Hearing is a necessary part of learning to speak, and Verity will be especially vulnerable in this area as it is. So she will need follow-up hearing tests done every six months to help catch potential problems early.
We are both tired out by our excursion, and one of us is looking forward to another good rest tomorrow. And our other children are looking forward to spending a day with our good friends again! How He is blessing us!